Opinion

Commentary: Are we forgetting the lessons of Willowbrook?

A state facility for people with disabilities has gone without air conditioning for years. It’s a reminder of how easily neglect can return when institutions are out of the public eye.

By Vicky Hiffa,For the Times Union July 19, 2026

Building 29 at Willowbrook Development Center on Staten Island is seen in this 1970s-era photo. Now long shuttered, the institution was infamous for abuse, neglect and dehumanizing conditions, and news reports of its conditions led to changes in laws governing institutional care.Jim Romano/New York Daily News via Getty Images

Sunmount, a state facility in Franklin County that is home to approximately 145 people with severe intellectual and developmental disabilities, has reportedly lacked functioning air conditioning for nearly three years. That is unconscionable — especially considering this summer’s oppressive heat wave that has brought temperatures above 90 degrees for multiple days.

Three years is not a repair timeline. It is a failure of responsibility. How was this allowed to happen? The state must demand an answer.

The Trainings Everyone’s Talking About This Summer!

From: Simcha Weinstein <sweinstein@ftnys.org>

Parents, Caregivers, and Allies,

Our recent Dual Diagnosis, Whole Person: Neurodiversity & Mental Health training was our biggest turnouts yet. As summer gets underway, we’re excited to continue offering opportunities to learn, connect, and grow together.

These trainings are designed for and by parents and caregivers, with lived experience front and center. We also welcome allies, professionals, and providers who want to learn alongside families and help build stronger systems of support.

Coming Up Next

Understanding Guardianship: Options, Alternatives & Informed Decision-Making
June 23 | 10:00 AM – 11:30 AM

Explore guardianship, supported decision-making, and practical planning tools to help families make informed decisions while balancing safety, rights, and independence.

Register Here:
https://us02web.zoom.us/meeting/register/PzS6zfQLTEOVAuQ_LSHv8w#/registration

Advocacy Through Authenticity: Culture, Confidence & Connection
June 30 | 10:00 AM – 11:30 AM

Build confidence in your advocacy while honoring your culture, identity, values, and lived experience.

Register Here:
https://us02web.zoom.us/meeting/register/0SbxuGNESbmYyQGvNV0jMg#/registration

We’d love to have you join us this summer. Please feel free to share these trainings with family members, friends, colleagues, providers, neighbors, and anyone who may benefit.

Hope you’ll join us this summer!

Kim & Simcha

Simcha Weinstein | Community Engagement & Inclusion 

Upcoming Training

Families Together in New York State

Email: sweinstein@ftnys.org Cell:(917) 853-0133 

Families Together in New York State

http://www.ftnys.org/