All – This is a follow-up reminder to anyone interested in providing input in a more structured way to the Coalition for Whole Person Supports. We are especially interested in input from self-advocates, families, and providers. There are two groups that will be providing more formal input: the advisory group and the steering group. The latter will take input from the advisory board and may eventually produce recommendations for models that support more whole person care. Volunteering does not mean you are signing on to a position, but we do want you to be open to models that are more holistic in their approach to supporting people with I/DD. Both groups will be reviewing various models and prototypes of supports and the steering committee may eventually develop recommendations for change. Volunteering for either group will require about a half-dozen hours of your time between mid-October and the end of the calendar year for meetings and conversations.
If you are interested, please complete this form by next Friday, October 4th.
Selection Process: A smaller group, consisting of at least 1 self-advocate, 1 parent, 1 provider, and 1 knowledgeable but un-impacted party will be convened to help with the selection process for both the steering group and advisory group. Below is more detail and a proposed overview of each group. Once members for each group are selected, the members of each group will be allowed to further refine and shape their roles and procedures. The following is our proposal for the functions of each group:
Proposed Functions of Steering Committee
- The steering committee will develop and vote to finalize the following core components of the coalition:
- Key principles of the Coalition for Whole Person Supports
- Coalition administrative matters, such as the management of the website
- Oversee the work of the coalition related to policy analysis and partnerships with other organizations
- The steering committee will also be responsible for the development of policy recommendations to be provided to NYS that primarily focus on the models of integrated care that the coalition reviews.
- Serve as representation for the providers, individuals, and families within the region they are nominated from by aggregating ideas and feedback to include in the deliberation process and recommendations.
Proposed Functions of Advisory Board
- The advisory board will provide input to the steering committee on various policy recommendations and whole person care models reviewed by the coalition. This input will include:
- Support for the model(s) and contextualizing the models with the real-world issues the model(s) may solve
- Opposition to the model(s) along with justifications for why the model(s) will present a challenge for the system
- Implementation considerations for each model and policy recommendation under consideration
- The advisory board will also raise issues in the field that the coalition should address and consider, as they pertain to whole person care. This will include the identification of additional models for review and analysis by the coalition including the entire advisory board and the steering committee
Again – Thank you for interest and willingness to consider serving on one of these groups. We hope these efforts, at minimum, help to further a conversation about ways to improve supports with the end goal being supports and services that better meet all the needs of individuals with I/DD.
Courtney Burke
Sachs Policy Group
ENYDDA 