Commissioner Neifeld resigns as of June 2024 

An Important Message from Commissioner Neifeld

Dear Friends and Colleagues –

It is with heartfelt sadness that I write today to announce my plan to resign from the position of Commissioner at the Office for People with Developmental Disabilities effective at the end of June. Serving as your Commissioner over the last two and a half years has been a true privilege and a personal and professional high point. It has been my honor to serve amongst the dedicated and committed professionals within this organization and along side you – inspiring self-advocates, family members and loved ones, and provider organizations. Since my first day in this office, I have been overwhelmed by the outpouring of support and the gracious way that this community has embraced me and taught me. It will be hard, perhaps impossible, for me to find another professional role that will be as fulfilling and important as this one has been.

At this time, I am choosing to scale back my professional life in exchange for taking a bigger role in supporting my family. Many of you know the difficulties faced by working parents and since returning from my recent maternity leave, I have found those difficulties to be more pronounced and harder to balance.

Although I am sad to leave my post as Commissioner, I am confident that the incredible work of this agency will continue forward. Under Governor Hochul’s leadership we have invested significantly in our system, adding hundreds of millions of dollars in new funding, releasing a bold Strategic Plan that charts a progressive course for our system, continued to invest in agency and system infrastructure and have begun reviewing and making improvements to foundational programs like care coordination, self-direction and others. These commitments and improvements will continue – all designed to support the lives of people with developmental disabilities by increasing access to high quality services that foster independence and integration.

The leadership and staff at this agency are amazing and they have my full confidence and support as they continue their incredible work, and so do all of you as you remain committed and vocal advocates for what is best for yourselves, your loved ones and those you serve. Following my departure, Executive Deputy Commissioner Willow Baer will serve as the Acting Commissioner. I am confident in Willow’s ability to lead the agency.

I remain eternally grateful to Governor Hochul for her leadership and for giving me the opportunity to serve New Yorkers in this capacity. I would like to thank every self-advocate, family member and loved one, provider, DSP and all the OPWDD and provider staff who have welcomed me into your homes, your programs and who have shared your stories with me. I wish you all the very best and hope to see many of you in the months between now and when I leave the office. In the meantime, you are welcome to reach out to me directly via email if you would like to connect: kerri.e.neifeld@opwdd.ny.gov

Sincerely yours,

Kerri Neifeld

National Core Indicators (NCI) In-Person Survey for 2023-2024

The Office for People With Developmental Disabilities is excited to announce the start of the National Core Indicators (NCI) In-Person Survey for 2023-2024. This survey asks adults aged 18+ who are receiving services about their quality of life and how they feel about the services they receive. This year we are surveying over 1,700 people across New York State. The NCI In-Person Survey is optional and will not impact the current services or supports a person receives from OPWDD.

Letters to eligible participants were sent out in early February 2024, letting them know  that they may be asked to participate in the NCI In-Person Survey. Our interview team is starting to contact people to schedule a HIPAA-compliant Zoom interview.  

For commonly asked questions about this project, please see the NCI IPS Frequently Asked Questions below or visit the project website: https://vitalresearch.com/newyork/nci/index.html   

New York National Core Indicators (NCI) In-Person Survey

Frequently Asked Questions

What is the NCI In-Person Survey?

  • A voluntary effort by the New York State Office for People with Developmental Disabilities (OPWDD) to measure and track their own performance  
  • “Face-to-face” interviews via HIPAA-compliant Zoom video conference with adults with developmental disabilities
  • The survey gathers the opinion and experiences of people who receive services from OPWDD.

What is the purpose of the NCI In-Person Survey?

  • The survey is not an assessment or review of your program.
  • The survey only asks for people’s opinions about their quality of life and the services they receive (e.g., choices of activities, employment, health and safety and direct support professionals).
  • Feedback gathered will be used to continue making the services and supports more responsive to the support needs of people who receive services.

What is support staff’s role in the NCI In-Person Survey?

  • Staff may help participants schedule interviews, set up Zoom, connect to the Internet, or interact with the Interview team.

Where can I get more information about the NCI In-Person Survey?

Who at OPWDD can I contact with questions about the NCI In-Person Survey?

We’re facing a crisis in caregiving for the disability community

By Diane Baehre

Shared from the 11/16/2023 Albany Times Union eEdition

COMMENTARY

Lawmakers in Albany failed the disability community this past session. They failed providers, caregivers, family members and, most importantly, individuals living with intellectual and developmental disabilities.

Organizations throughout the state made clear to legislators and Gov. Kathy Hochul that without a significant increase in pay for direct-support professionals, the ongoing staffing crisis would reach dire levels. With inflation still elevated, these dedicated individuals face increasingly strained financial situations. Their dedication is admirable and unwavering, but many can no longer afford to live on the wages the state provides, and the wages certainly do not align with the incredibly demanding work they perform day in and day out.

Regularly we hear officials pledge their support for the I/DD community and vow to ensure ample resources are provided, only to come up short on delivering those resources. This year alone, we were left short on cost of living increases, receiving 4% — less than half of the 8.5% the industry projected it would need to sustain workforce levels and attempt to recruit additional workers. Additionally, a bill to provide an average $4,000 annual pay increase to direct-support professionals was never even given full consideration on the floor.

Legislators’ lack of commitment has caused the warning lights to flash in our industry, and the blunt truth is this: Our industry will not be able to sustain or grow our workforce without immediate action to raise wages.

The intellectual and developmental disability community is a massive network that needs dedicated support. As of 2016, an estimated 7 million to 8 million Americans were living with an intellectual or developmental disability, and 30 million Americans were directly affected by their care. These are real people with very real needs — needs that must be addressed consistently, and in many cases continually.

Routinely we hear from the governor and our legislators in Albany that we are a compassionate state and that New York leads the nation. These words ring hollow until the needs of the most vulnerable in our state are met.

Individuals and their families cannot wait for care. With the new legislative session set to begin in the new year, it should be the priority of every senator and Assembly member to meet these funding needs to ensure that a strong workforce is present to care for New Yorkers with intellectual and developmental disabilities. There is no town, city or county, or Senate or Assembly district, that is not directly affected by this lack of funding. It is far past time for lawmakers to get serious about addressing it.

Diane Baehre is the executive director of Empower, a disability services provider in Niagara County.

Abuse Prevention Toolkit

Best Practices for Choking Prevention
Studies have shown that people with intellectual and developmental disabilities are nearly 11 times more likely to die from respiratory-related conditions, often linked with difficulties swallowing (dysphagia), choking, and aspiration.From January 1, 2020, through June 2022, the Justice Center received nearly 1,000 reports of food-related choking incidents. This toolkit was developed to provide agencies with resources to help develop and implement policies and practices to prevent these incidents.
Read Here
Visit Our Abuse-Prevention Blog!We’ve launched a blog! Now, readers can access all the content featured in our toolkits, plus much more, in a brief, user-friendly format. Follow the link to check it out!
Visit the Blog

Vibrant Brands, Inc. Selected to Design Statewide DSP Marketing Recruitment Campaign

Dear Friends and Colleagues,

I am excited to share that OPWDD is beginning our work with Vibrant Brands, Inc. to develop and launch a statewide marketing recruitment campaign to elevate and grow the direct support workforce.

No challenge before us is more urgent than the need to make sure OPWDD and our non-profit provider partners have the staffing required to support New Yorkers with developmental disabilities.

Through a Request for Proposals issued earlier this year, we have selected Vibrant Brands, Inc. to help us research and design an effective campaign to inform the public about the value Direct Support Professionals bring to our communities and connect qualified, compassionate job seekers to this rewarding field. Vibrant brings 20 years of experience in marketing for non-profit organizations, with an extensive focus on helping them recruit for Direct Support Professionals, nurses and other healthcare professionals.

Working with a diverse group of advisors made up of self-advocates, non-profit provider agency representatives, family members and OPWDD staff, Vibrant will develop a statewide media campaign that promotes the field of direct support for people with developmental disabilities. Its purposes are two-fold ─ to grow a common understanding and appreciation for this meaningful work and to develop an interactive website that will connect new workforce candidates to job opportunities with service providers throughout the state.  

Workforce shortages continue to impact the lives of people with developmental disabilities. I know these shortages are impacting all of you. Over the last year, OPWDD has launched several initiatives aimed at supporting the direct support workforce, including direct bonus payments to workers for their service during the COVID pandemic and working with The National Alliance for Direct Support Professionals and the State University of New York to launch, and engage students in, new educational opportunities across the state.

In addition, OPWDD is working with the New York Alliance for Inclusion and Innovation to provide technical assistance to service providers throughout the state. This effort has engaged service providers in organizational self-assessments to help them become more effective in their recruitment and retention and a community-of-practice that will support enhanced workforce practices.

The marketing recruitment campaign will complement these efforts in an important way by directly reaching job candidates in all parts of the state with a compelling invitation and opportunity to join our mission and embark on an impactful career. The campaign will engage new pools of job candidates, including New Americans, high school students, college students seeking part-time work or careers in human services, second-career job candidates and others.

Our work to strengthen and support the direct support workforce will continue every day. There is much more to do. As OPWDD recognized National Direct Support Professional week last month, it was my privilege to meet and speak with many DSPs. As always, I was heartened and humbled by their tremendous personal commitment to their work. Hearing the stories of their challenges and their accomplishments encourages me to continue advancing the work we need to do as an agency – in partnership with all of you – to support people with developmental disabilities and the dedicated professionals who work passionately to help them succeed.

Sincerely,

Kerri E. Neifeld
Commissioner

Justice Center eNews

Code of Conduct and Champion Award Winners AnnouncedThe Justice Center recently announced its 2023 Code of Conduct and Champion Award winners. These awards honor individuals and groups who work tirelessly to improve the lives of individuals with special needs in New York State.This year’s program comes on the heels of the Justice Center’s 10-year anniversary – a major milestone in the agency’s mission to protect vulnerable populations from abuse and neglect. Those honored during the 2023 Code of Conduct and Champion Awards truly embody the Justice Center’s founding principles and ethical standards outlined in the Code of Conduct for Custodians of People with Special Needs.The Justice Center received more than 100 nominations for this year’s program, selecting four Champion Award winners and six Code of Conduct Award winners. Each submission was accompanied by stories straight from the service industry that uniquely characterized the dedication of our NYS workforce.Thank you to all who made this year’s awards so special! To view a list of the 2023 award recipients, click here. A full recording of this year’s ceremony along with information on the program can be found in the link below. 
View Webpage
Free Training AvailableThe Justice Center is offering free train-the-trainer courses for the Code of Conduct.  This interactive, three-hour webinar provides participants with tools they can share with new and experienced staff to prepare them to understand, utilize, and practice the Code of Conduct.Available  October 26 and November 15.Register Now Link Up With UsWant to keep up more regularly with Justice Center news?  Join us on LinkedIn!  The agency page features professional events, staff spotlights, announcements, and more.  We also regularly feature opportunities to start or continue your career by joining the Justice Center’s staff!  Make sure to follow the Justice Center on LinkedIn and connect with us regularly!Access Here Individual & Family Support SessionsLearn how the Justice Center supports individuals receiving services and their families, including during the investigation process.  Our advocates will also discuss self-care and how to create a self-care plan.Available sessions will take place October 16, 17 & 18Register Now
eNews - Notable Updates Section HeaderNew Prevention Toolkit on Choking Prevention ReleasedThe Justice Center tracks trends in reports made to the agency, identifying areas where preventative measures may help stop incidents from happening. Between 2020 and 2022, the Justice Center received nearly 1,000 reports of choking incidents. Studies show that individuals with developmental disabilities are nearly 11 times more likely to die from respiratory-related conditions, often linked with difficulties with swallowing and choking. To address this trend, the Justice Center produced the Spotlight on Prevention toolkit: Best Practices for Choking Prevention. It provides resources to help develop and implement policies and practices to prevent these incidents from occurring. The toolkit includes trainings, sample policies, and case studies. It is available on the Justice Center’s website.See the ToolkitSign up for more content from the Justice CenterOnly receiving eNews right now? You can check out all the great newsletters we offer by visiting your personalized preferences page. There, you can subscribe to any and all content that the Justice Center offers. Manage your preferences here. 

HCBS Waiver Amendment 14 Approved

Comprehensive Home and Community-Based Services (HCBS) Waiver Amendment- Amendment 14 Approved

OPWDD’s 1915(c) Comprehensive Home and Community-Based Services (HCBS) Waiver Amendment, Amendment 14 has been approved by the federal Centers for Medicare and Medicaid Services (CMS) to take effect October 1, 2023.

The HCBS Waiver is the Medicaid program that provides a range of services for adults and children with developmental disabilities in their own home or community.

The approved amendment to the HCBS Waiver, which was submitted for CMS approval following a formal public comment period that concluded on May 12, 2023, includes:

  • Permanent adoption of certain provisions that were temporarily granted to address the COVID-19 Public Health Emergency (PHE). These specific provisions affect service rates, expansion of remote technology and continued limits on agency reimbursement for administrative costs.
  • Making it easier to update rates and fees associated with the waiver services by placing them in tables that are posted on the NYS Department of Health’s website rather than including them specifically in OPWDD’s waiver agreement document.
  • Support for OPWDD’s new risk stratified method for conducting on-site visits to certified waiver service locations.
  • Modifications to the existing Assistive Technology – Adaptive Devices service to allow for a subset of services dedicated to Home-Enabling Supports.
  • A return to hard limits for Assistive Technology (AT), Vehicle Modification (V-mod) and Environmental Modification (E-mod) services once American Rescue Plan Act (ARPA) funds are fully exhausted or expired. This Waiver amendment also raises the funding thresholds for approval of AT, V-mod and E-mod services.

The changes are explained in plain language in our updated document “HCBS Waiver Amendment – October  2023” which can be found on our agency website.   

In addition, a copy of the approved October 1, 2023, Waiver amendment, and OPWDD’s response to the public comment received, is available on the OPWDD website at:

https://opwdd.ny.gov/providers/home-and-community-based-services-waiver.

Additional guidance regarding these provisions will be provided over the next several weeks.

To view this announcement in another language, visit https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

Чтобы просмотреть это объявление на другом языке, посетите https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

অন্য ভাষায় এই ঘোষণা দেখতে, ওয়েবসাইট দেখুন https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

Pour voir cette annonce dans une autre langue, visitez https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

Pou wè anons sa nan yon lòt lang, vizite https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

Aby zobaczyć to ogłoszenie w innym języku, odwiedź stronę https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

要以其他语言查看此公告,请访问 https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

لرؤية هذا الإعلان بلغة أخرى، يرجى زيارة

https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

اس اعلان کو کسی دوسری زبان میں ملاحظہ کرنے کے لیے، ملاحظہ کریں۔

https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

이 내용을 다른 언어로 보려면을 방문하십시오 https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

Para ver este anuncio en otro idioma, visite https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

צו זען דעם מודעה אין אן אנדער שפּראַך, באַזוך:

https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

Si vuole vedere questo annuncio in un’altra lingua, può visitare https://opwdd.ny.gov/news/comprehensive-home-and-community-based-services-hcbs-waiver-amendment-amendment-14-approved

Share Your Member Experience with OPWDD

OPWDD Townhall Meeting
on Future Planning

Your Opportunity to Be Heard

The Office for People with Developmental Disabilities (OPWDD) is hosting discussions designed to hear from people with IDD and their families to inform future planning. LIFEPlan CCO encourages you to participate in these upcoming discussions. It is important for your voices to be heard. We want our Members with IDD to get access to quality healthcare and disability support services when they
need them.

We strongly encourage you to join one of the meetings below to tell OPWDD what is and is not working in the current system.  

Examples of topics you might share

  • Do you struggle to find doctors or providers who will accept Medicaid?
    • Primary care providers
    • Specialists – neurology, cardiology, GI, etc.
    • Behavioral health, Autism services, e.g., behavior analysts
    • Dentists
  • Do you have difficulty finding medical providers who understand the unique needs of people with autism, cerebral palsy, Down syndrome, and other intellectual and developmental disabilities?
  • What disability supports and services have been difficult to access?
    • Respite and family reimbursement
    • Residential options to live in the community – planning for long-term needs
    • Supports living at home
    • Community services
    • Employment for people with IDD
  • Are there barriers to getting services and supports that need to be fixed?
    • Delays in eligibility determinations
    • Delays in approval for services
    • Long waitlists to receive services
    • Qualified staff not available
  • If you use self-direction, does it meet your needs? How can it work better?
  • What services and supports do you expect to need in the future that you worry won’t be there when you need them?
    • People with aging caregivers
    • People who age out of the school system (age 22+)
  • Are there supports and services that you/your family member need that are not available today?

Please be sure to share what is working for you, that you would like to stay the same, and what can be improved.

Be part of the change and sign up for one of the sessions below!

October 2 | 1:00 – 2:30 p.m.

October 2 | 6:00 – 7:30 p.m.

October 6 | 1:00 – 2:30 p.m.

October 6 | 6:00 – 7:30 p.m.

October 10 | 1:00 – 2:30 p.m.

October 10 | 6:00 – 7:30 p.m.

Direct-support work deserves higher pay

Albany Times Union, Thursday September 28, 2023

We want to thank the Times Union editorial board for sounding the alarm in the editorial “New York’s care crisis,” Sept. 10. The conclusion that the need is now and increasingly urgent is spot-on, but the editorial did not include the crisis in the developmental disabilities sector.

Save Our Services is a statewide group of family members and providers who advocate for increased funding to pay a living wage to direct-service professionals who support people with intellectual and developmental disabilities. Unfortunately, our pleas have, with a few limited exceptions, fallen on deaf ears.

Clarence Sundram, a nationally renowned expert on services for individuals with intellectual and developmental disabilities, described direct service professionals’ work: “One might summarize the job description as requiring the wisdom of Solomon, the patience of Job and the caring of Florence Nightingale.”

Yet direct-service professionals earn only a dollar or two above minimum wage. This was not always the case. In 2010, direct-service professionals’ starting pay was 50% above minimum wage.

Dramatic increases are needed to make up for a decade of neglect and stagnant wages. Additionally, while direct-service professionals employed by nonprofits provide 85% of services to individuals with intellectual and developmental disabilities, they earn substantially less than those employed by the state.

Gov. Kathy Hochul and the Legislature must include a substantial investment in direct-service professional wages in the upcoming state budget and, equally important, a plan to bring their wages to a level commensurate with what is required of them.

Karen Nagy- Rexford

Margaret RaustialaNissequogue

Members, Save Our Services